Parental Guilt And Questioning Oneself

Since I have gotten my diagnosis of MD, all the challenges and difficulties I have faced all my life, are now explained by this diagnosis. The puzzle pieces have been put together. With that being said there has been a lot of reflection, especially among my family. One of the things that they have said to  me since the diagnosis is that looking back now, they feel that they should have noticed the signs more, and feel as though they may have let me down. I constantly tell them that is not true, but being parents I can understand why they feel that way. Parents and grandparents, feel they have the responsibility to notice signs when their child is struggling and having difficulties, and when they don't it brings up a lot of feelings in emotionsu. My family had no way of knowing that my walking difficulties, challenges with various activities were the signs of this devastating condition known as MD. They start to feel like and ask themselves, by doing this or that did we make the problem worse, would I not have all the difficulties I do right now. The answer is no, but as parents and grandparents their job is to protect me and keep me safe and healthy. And when your child or grandchild is living with a disability and has faced challenges since they were very young, and continues to face them, its hard not to feel as though you did or didn't do something. My family did everything they could to find out why I experienced the challenges I faced, they were and are today on top of it. Its natural to feel guilt or question oneself when a family member or a loved one is going through a difficult situation, moreso if you are a parent or grandparent. As time goes bye those thoughts and feelings that they have will come and go. When a parent or family members starts to think that way, its important to remember that it is a natural feeling to have. I know that my family feels this way at times because they love and care about me so much. I know that they did everything they could, and I tell them that and reassure them. By letting them know that I don't blame them in any way, helps to ease those feelings of guilt and allows them to not question themselves.